it breaks my heart listening to ava call to my mom "help mom!" while crying when my dad changes her diaper because to think of it its basicly her saying help! because my mom was preparing her daily shot and i guess ava saw it. if i could i would save that baby from all this. its for her health though.
i bet its pretty rare a baby comes along with ALL these diagnosis's. its also pretty rare that a toddler comes along that needs a daily shot. you guessed it; its Ava. <3

everythings a mess!!

well ava is out of the hospital. has been for only one day. nobody knows whats going to happen next. not only does she have laryngomalacia and midocondreal disease, she also has growth hormone difiency. i swear, i cant keep up with all this!!!! i hope nothing happens to my mom because she is the only one that can take care of ava and knows about all of her stuff.
everyday, ava has to have a shot in her leg and around three or four times a day we have to test her blood sugar, poor ava, she has alot going on!!!!! As long as she knows we all love her, which we do!!!!! why wouldn't we?? she is adorable and just sooo innocent. you can tell she is brave just by the way she acts.

i just got done eating dinner: salisbury stake and mashed potatoes.  my ankle is still sprained. it hurts like crap too.  my uncomfurtible air cast, i took iff for a little while about a hour ago because it feels like its crushing my bone and seems to be causing more pain than its suppose to be relieving.

i am missin drue. we broke up around a month ago and i just cant get over him. he stole a piece of my heart.

it's been a while since i posted last. Also alot has happened. The test results for my sister, Ava came back posotive so my two year old sister has midocondrial disorder. Ava has been through alot but knowing the fact that she won't live to be 60 at most is pain! Their is no cure for this disease so Ava will have it her entire life, but  i am happy she is healthy now. she's been out of the hospital for a long time now and we have quite an improvement.
I am learning to play the flute......i know a b flat, which is pretty easy considering it's the first note i learned. my band instructor's name is Shawn Lenny.

Back to the hospital

Well today was fun, in the beginning. My mom used to have a stage four nearo blastoma (deadly cancer)
and today we went to a cancer survivors picnic at the zoo. The thing is, that my Mom, Dad, Ava, and I weren't feeling well. However Christian was perfectly fine. Ava has her G-tube now, so she was super sensitive and she was taken to the hospital from a infection on her stomache, and her lack of energy. She has been admitted for the night.

new school, new fundraisers

My school is asking that we sell entertainment books for the middletown dayton area. I can only get one person to buy.  Not even my parents!

success!!!! :)

Ava had surgery finally on Wednesday and so far, has been doing fantastic! she now has gotten rid of the NG tube and has a G tube. The muscle biopcy went well too. Although she may have a tube in her stomache, and a glued shut cut on her thigh, she is still running around, playing , laughing, eating, drinking, and having great time. I am very thankful she is doing well.

ava in her pool