it breaks my heart listening to ava call to my mom "help mom!" while crying when my dad changes her diaper because to think of it its basicly her saying help! because my mom was preparing her daily shot and i guess ava saw it. if i could i would save that baby from all this. its for her health though.
i bet its pretty rare a baby comes along with ALL these diagnosis's. its also pretty rare that a toddler comes along that needs a daily shot. you guessed it; its Ava. <3
About ,myself and ava; the sister i have always dreamed of. but what happens when she just happens to have a bunch of deadly diseases? a breath taking journey of my life.
Saturday, November 13, 2010
everythings a mess!!
well ava is out of the hospital. has been for only one day. nobody knows whats going to happen next. not only does she have laryngomalacia and midocondreal disease, she also has growth hormone difiency. i swear, i cant keep up with all this!!!! i hope nothing happens to my mom because she is the only one that can take care of ava and knows about all of her stuff.
everyday, ava has to have a shot in her leg and around three or four times a day we have to test her blood sugar, poor ava, she has alot going on!!!!! As long as she knows we all love her, which we do!!!!! why wouldn't we?? she is adorable and just sooo innocent. you can tell she is brave just by the way she acts.
i just got done eating dinner: salisbury stake and mashed potatoes. my ankle is still sprained. it hurts like crap too. my uncomfurtible air cast, i took iff for a little while about a hour ago because it feels like its crushing my bone and seems to be causing more pain than its suppose to be relieving.
i am missin drue. we broke up around a month ago and i just cant get over him. he stole a piece of my heart.
everyday, ava has to have a shot in her leg and around three or four times a day we have to test her blood sugar, poor ava, she has alot going on!!!!! As long as she knows we all love her, which we do!!!!! why wouldn't we?? she is adorable and just sooo innocent. you can tell she is brave just by the way she acts.
i just got done eating dinner: salisbury stake and mashed potatoes. my ankle is still sprained. it hurts like crap too. my uncomfurtible air cast, i took iff for a little while about a hour ago because it feels like its crushing my bone and seems to be causing more pain than its suppose to be relieving.
i am missin drue. we broke up around a month ago and i just cant get over him. he stole a piece of my heart.
Saturday, October 23, 2010
it's been a while since i posted last. Also alot has happened. The test results for my sister, Ava came back posotive so my two year old sister has midocondrial disorder. Ava has been through alot but knowing the fact that she won't live to be 60 at most is pain! Their is no cure for this disease so Ava will have it her entire life, but i am happy she is healthy now. she's been out of the hospital for a long time now and we have quite an improvement.
I am learning to play the flute......i know a b flat, which is pretty easy considering it's the first note i learned. my band instructor's name is Shawn Lenny.
I am learning to play the flute......i know a b flat, which is pretty easy considering it's the first note i learned. my band instructor's name is Shawn Lenny.
Saturday, September 11, 2010
Back to the hospital
Well today was fun, in the beginning. My mom used to have a stage four nearo blastoma (deadly cancer)
and today we went to a cancer survivors picnic at the zoo. The thing is, that my Mom, Dad, Ava, and I weren't feeling well. However Christian was perfectly fine. Ava has her G-tube now, so she was super sensitive and she was taken to the hospital from a infection on her stomache, and her lack of energy. She has been admitted for the night.
and today we went to a cancer survivors picnic at the zoo. The thing is, that my Mom, Dad, Ava, and I weren't feeling well. However Christian was perfectly fine. Ava has her G-tube now, so she was super sensitive and she was taken to the hospital from a infection on her stomache, and her lack of energy. She has been admitted for the night.
Sunday, September 5, 2010
new school, new fundraisers
My school is asking that we sell entertainment books for the middletown dayton area. I can only get one person to buy. Not even my parents!
Saturday, September 4, 2010
success!!!! :)
Ava had surgery finally on Wednesday and so far, has been doing fantastic! she now has gotten rid of the NG tube and has a G tube. The muscle biopcy went well too. Although she may have a tube in her stomache, and a glued shut cut on her thigh, she is still running around, playing , laughing, eating, drinking, and having great time. I am very thankful she is doing well.
Sunday, August 22, 2010
those of you may know my sister Skylar Lawson. she has her own blog and she quit blogging for a while because she couldn't get any followers... I am following her footsteps..... just joking! not really although I am ticked off. Any way I was on a video of her and i singing and she deleted it!!!!!!!!!!
Thursday, August 19, 2010
Tuesday, August 10, 2010
looking back at the past
okay i do give ava credit. she has been thru alot and had many surgeries but it is all for her health. and i think she is in good hands. in september she is getting a mussel biopcy and a g tube. poor thing!
so i deticate this blog to her! and hope fully my faith in her will keep her how she is now but better!
so i deticate this blog to her! and hope fully my faith in her will keep her how she is now but better!
who doesn't like a outlet mall?
I am so excited! Today I am going to the outlet mall, then going to my bff's house.........Finally I can get some new clothes. Just what I need is a tank, a tee, and some sweat pants!
about ava
ava is a two and a half year old little girl. tons of health problems but she is honestly a very sweet toddler. she can breathe now, but about a year ago she hardly could breathe without making a noise or a stridor.
Ava's laryngomalacia good day!
baby sister ava about two years ago. of course now her breathing
is a bit better but she now wears pulse sox, ng tube, and oxygen.
bye bye jerry
okay so i had a uncle who i haven't seen in years who i used to be very close to be, and lived down in Talahassee, Florida and he was missing for a while, but it turns out he was dead.......i really was in tears when i found out. so my other uncle and his wife went down there to find out if he had any wishes, and it turns out they need help, so my dad is going down there. his name was jerry alan carter. you can find him on the web.
A new day
I am happy my 2 yr old sis is out of the hospital and home and healthy. she has a ton of health problems, but shes a tough cookie. she now has a ng tube and will be getting a G-tube in September. She doesn't actually love it, but she is getting used to it. I really hope she can stay healthy and home cause she is a real miracle and such a sweet heart.
Sunday, August 8, 2010
school
I am so excited for school...... i get to see and reunite with all my friends again. Also i am in band and looking forward to trying my best and sounding loud and proud. (clairinet), that's my thing :)
I don't mind tests, but i HATE the days when i am tired and get up at six. At least i am getting a good education......... yeah right. It is hard to pay attention.
I don't mind tests, but i HATE the days when i am tired and get up at six. At least i am getting a good education......... yeah right. It is hard to pay attention.
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